What is Periodic Paralysis? PERIODIC PARALYSIS IS NOT YOUR FRIEND
What is Andersen-Tawil Syndrome? MORE THAN 100 OF US.
What are the Periodic Paralysis Triggers? AVOID AT ALL COST
How Do I Discover My Triggers? IF YOU DID NOT WRITE IT DOWN, IT DID NOT HAPPEN
Describe - Diagnose - Manage Periodic Paralysis
How Do I Manage Periodic Paralysis? WALKING A TIGHTROPE
Periodic Paralysis and Oxygen ; I CAN'T BREATHE
How Do I Get a Diagnosis; HIT THEM BETWEEN THE EYES WITH THE FACTS!
How Bad Will I Get? I DO WHAT I CAN, WHEN I CAN, IF I CAN
Periodic Paralysis and Your Doctors; THE LOOK AND THE SHRUG
Periodic Paralysis and the EMT'S; NO IV OR TOURNEQUET PLEASE
Periodic Paralysis and the ER; BE AFRAID, BE VERY AFRAID
Periodic Paralysis and the Family; IT'S JUST THAT SIMPLE
Periodic Paralysis and Your Friends; WHAT FRIENDS?
Period Paralysis and Caregivers; GIVE ME A BREAK
Periodic Paralysis and Your Community; EDUCATE, EDUCATE, EDUCATE
Periodic Paralysis and Genetics “THE RED BADGE OF COURAGE”
Periodic Paralysis and Traveling; A PLEASANT SURPRISE
Finding a Doctor Who Cares; NOT AN EASY TASK BUT POSSIBLE
Our Stories; YOU ARE NOT ALONE
Facebook Network; LET'S CHAT
Medical Toolkit; MEDICAL SUPPLIES
Diet and Nutrition: Management of Periodic Paralysis
Resources and Links; LITERATURE
'Acid-base pHysiology' ACID BASE PHYSIOLOGY
Clinical Review; METABOLIC ACIDOSIS
Press Releases; NEWSPAPER ARTICLE
Medical and Financial Assistance Programs
Medical Service ProvidersContact
My Profile on Skrive It
All donations will be used to pay for the day-to-day expenses incurred by Periodic Paralysis Network. At this time donations are not tax deductible.
Read our story in an article published by "Living on the Peninsula, Fall 2013"
See page 33.
Living on the Peninsula, Fall 2013
Periodic Paralysis is a rare, hereditary disease characterized by episodes of muscular weakness or flaccid paralysis without the loss of sensation or consciousness. It is a channelopathy; a disease involving dysfunction of an ion channel for potassium, sodium, chloride and calcium. There are three types: Hypokalemic Periodic Paralysis, results from potassium moving from the blood into muscle cells in an abnormal way. It is associated with low levels of potassium during paralytic episodes. Hyperkalemic Periodic Paralysis results from problems with the way the body controls sodium and potassium levels in cells. It is associated with high levels of potassium during paralytic episodes. In Andersen-Tawil Syndrome ATS, paralysis results when the channel does not open properly; potassium cannot leave the cell. This disrupts the flow of potassium ions in skeletal and cardiac muscle. During paralytic episodes, ATS can be associated with low potassium, high potassium or shifts in the normal ranges of potassium. Periodic Paralysis is mineral metabolic disorder.
The Periodic Paralysis Network was created to provide a hands-on approach to understanding the disease, getting a proper diagnosis, managing the symptoms, and assisting caregivers and family members. We will attempt to discuss issues relating to Periodic Paralysis in practical language. Our hope also is that the medical professionals dealing with individuals with Periodic Paralysis may come to our site and learn more about how to recognize, diagnose and properly treat their patients in a timely manner.
Hello, my name is Susan and I have Periodic Paralysis (PP). I am 62 years old and was recently diagnosed on February 7, 2011. I was misdiagnosed for many years. Several other of my family members also have Periodic Paralysis.
"Woman tracks down cause of her paralysis;"
The information included in this Web site is intended for informational purposes only. We welcome everyone to share in the open and free exchange of knowledge and ideas without pre-conditions. All of the information and ideas originally produced by Periodic Paralysis Network is protected under US.Copyright Laws.(2013)