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NEW PUBLICATION!


What Is Periodic Paralysis? A Disease Like No Other
by
Susan Q. Knittle-Hunter

The Periodic Paralysis Network A.S.E.A. Series: Volume Two
Authored by Susan Q Knittle-Hunter
Edition 1

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Paperback Edition: $13.95 USD
Publication Date: Aug 24 2016
ISBN-13: 978-1536851731 (CreateSpace-Assigned)
ISBN-10: 1536851736
BISAC: Medical / Diseases
Page Count: 144
Binding Type: Paperback
Trim Size: 6" x 9" 15.24 x 22.86 cm)
Language: English
Color: Black and White

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What Is Periodic Paralysis? A Disease Like No Other defines, describes and explains all aspects of this little understood medical condition in Volume Two of the Periodic Paralysis Network A.S.E.A. Series (Awareness – Support - Education -Advocacy). Unlike the three prior books co-written by this author, which were designed to aid individuals with Periodic Paralysis and to improve their lives, this booklet has been designed and written to also share with their family members, friends, teachers, coworkers, neighbors, doctors and others who should know about and may want to know, the truth about this cruel disease. This fourth book, just as the other three, was written because there is a need to educate others and bring awareness of Periodic Paralysis to the world. There was and is a great need for a booklet that can explain the important aspects of Periodic Paralysis in simple terms and how they relate personally to and for each individual with this disabling condition. Some of the issues that are covered include but are not limited to, what Periodic Paralysis is and what it is not, how it is diagnosed, how it is treated, what the symptoms are, what causes the symptoms, what does an episode of paralysis look like, what is the prognosis and what kind of complications can occur. For each of these issues there is space for personal information to be included and written in as needed to further explain how the disease affects each individual before the book is passed to a family member, neighbor, doctor or teacher. Each concept is described and explained based on the true and actual history, experiences and needs of individuals with Periodic Paralysis. Periodic Paralysis is a multifaceted, complex, perplexing, complicated and overwhelming condition, which is very misunderstood by most doctors around the world, let alone patients with it and their friends and family members. The varying words, phrases and medical terms associated with it are difficult to pronounce and spell and even more difficult to understand. This book is an attempt to write about this very difficult and little understood disease in terms that are easy to understand and in an organized manner for better comprehension for those who need to or desire to know about it. Hopefully, this information will bring about awareness of these issues and educate everyone who has the occasion to read this book.

A Bill Of Rights For Periodic Paralysis Patients
by
Susan Q. Knittle-Hunter
Calvin Hunter

The Periodic Paralysis Network A.S.E.A. Series: Volume One
Authored by Susan Q Knittle-Hunter
Authored with Calvin Hunter
Edition: 1

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Paperback Edition: $7.95 USD
Publication Date: Sep 18 2015
ISBN/EAN13: 151719623X / 9781517196233
Page Count: 114
Binding Type: Paperback
Trim Size: 6" x 9"
Language: English
Color: Black and White


There was and is a great need for a bill of rights for all individuals who have a form of the disabling mineral metabolic disorder known as Periodic Paralysis. The Periodic Paralysis Network (PPN), inspired by the members of the ‘Periodic Paralysis Network Support, Education and Advocacy Group’ has now created 'A Bill of Rights For Periodic Paralysis Patients.' This booklet, the first in the PPN A.S.E.A. Series (Awareness, Support, Education and Advocacy), begins with an explanation of what a ‘bill of rights’ is and why they are written or created. 'A Bill Of Rights For Periodic Paralysis Patients' is outlined in seven sections, covering general rights, diagnosis, treatment in labs, treatment by doctors and treatment in the emergency room and the areas of research, awareness and insurance. In those, each concept is described and explained based on the true and actual history, experiences and needs of individuals with Periodic Paralysis. Hopefully, this information will bring about awareness of these issues and educate everyone who has the occasion to read this booklet as well as the medical professionals with whom individuals with Periodic Paralysis must depend upon for correct and proper care.

About The Periodic Paralysis Network
A.S.E.A. Series:Awareness ~ Support ~ Education ~ Advocacy
Volume One

A Bill Of Rights For Periodic Paralysis Patients is the first volume in a series of booklets or handbooks being created, written and published by the Periodic Paralysis Network, Inc. (PPN). This series, called The Periodic Paralysis Network A.S.E.A. Series, is designed to bring awareness of Periodic Paralysis to the world; to provide support to individuals with all forms of Periodic Paralysis and their family members; to educate individuals about all aspects of Periodic Paralysis to include medical professionals and to provide advocacy for those with the condition and their family members and caregivers. The PPN was created and exists to provide Awareness, Support, Education and Advocacy to and for all individuals with Periodic Paralysis, their family members and caregivers as well as all medical professionals, thus the acronym A.S.E.A. We begin this series with a bill of rights for patients with Periodic Paralysis.



The Periodic Paralysis Guide And Workbook:
Be The Best You Can Be Naturally

Susan Q. Knittle-Hunter
Calvin Hunter



 This book will provide readers with information and methods to better manage the often over-whelming and disabling symptoms of all forms of Periodic Paralysis. It is the second book written specifically about Periodic Paralysis, a very rare, usually inherited and often debilitating mineral metabolic disorder. It contains comprehensive information about the various forms of the condition written in an easy to understand format. It is a user-friendly guide, a set of plans, instructions and ideas for aiding individuals with all forms of Periodic Paralysis, to better manage their symptoms in natural and common sense methods. It is a workbook with a set of tools such as charts, forms and even a medical journal, with clear instructions for completing and using them. Each is designed to be individualized and may be utilized for the various plans or sections of the book. The charts and forms may be scanned and used separately or the pages may simply be completed in the book itself for keeping all medical information in one place. Easily transportable, this book is also a handbook and can accompany each visit to doctor appointments, the ER or the hospital. This guide may stand-alone or may be used in conjunction with the first book about Periodic Paralysis, living with Periodic Paralysis: The Mystery Unraveled. This guide, workbook and handbook is designed to assist individuals with all forms of Periodic Paralysis to 'be the best they can be naturally' and unravels the inherent mysteries of this rare condition.

ISBN/EAN13: 1503253813 / 9781503253810
Page Count: 218
Binding Type: US Trade Paper
Trim Size: 8.5" x 11"
Language: English
Color: Black and White
Related Categories: Medical / Education & Training

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Paperback Edition: $14.95 USD

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living with Periodic Paralysis: The Mystery Unraveled They say, “invention is born out of necessity”. living with Periodic Paralysis was “invented” or written out of necessity or an urgent need. The fact is there are no other up-to-date books written about Periodic Paralysis (PP), which is a serious, disabling and life-threatening, rare, genetic disorder which is often over-looked, misdiagnosed and mistreated. Information found on the Internet is scattered and sketchy at best. There is an urgent need to educate those with the different forms of Periodic Paralysis and their family members on all aspects of the disease including how to manage and alleviate their symptoms. There is also an urgent need to educate the medical professionals dealing with those individuals, and their families, to learn to recognize, diagnose and properly treat their patients in a timely manner. Lastly, there is a need to educate and bring awareness to everyone about this cruel and life destroying disease because the symptoms resemble so many other conditions and mistreatment with the wrong medications can be disabling or deadly. living with Periodic Paralysis is written through the eyes of Susan, a woman with this disease. She nearly died due to many years of misdiagnosis and mistreatment by medical professionals. Susan and Calvin, her caregiver and husband, uncovered the cause of her illness and managed to get a diagnosis at the age of 62. Periodic Paralysis intermittently causes muscle weakness and paralysis as well as heart and breathing issues. There are no known cures and treatment options are very limited. However, Calvin and Susan have developed natural, common-sense methods to manage her symptoms and help her to maintain some degree of normal daily activity. Calvin and Susan share their discoveries and unravel the mysteries of this rare condition in a well written and easy to understand format. It is their intention that the reader with Periodic Paralysis will improve the quality of his or her life by following the plans and advice and that they will know they are not alone in dealing with this disease. They desire the medical professionals reading the book will be able to recognize, diagnose and treat individuals with Periodic Paralysis correctly, in a timely manner and with the respect they deserve. To all others, they want to share their story and bring awareness of this cruel disease to the world with hopes of finding better treatment and a possible cure. living with Periodic Paralysis was written and published by Susan and Calvin Hunter, retired teachers who recently moved to the Olympic Peninsula.


living with Periodic Paralysis:
The Mystery Unraveled

Susan Q. Knittle-Hunter
Calvin Hunter



living with Periodic Paralysis is a must read for anyone suffering from the devastating effects of the mysterious disease called Periodic Paralysis. After nearly dying and after many years of misdiagnosis and mistreatment by medical professionals, Susan and Calvin uncover the cause of her illness. Based on a lifetime of experience and after nearly 3 years of experimentation, detailed research and tremendous study, they share their discoveries. living with Periodic Paralysis unravels the inherent mysteries of this rare condition.


Publication Date: May 09 2013
ISBN/EAN13: 1484062248 / 9781484062241
Page Count: 444
Paperback: 6" x 9"
Language: English


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Paperback Edition: $24.95 USD (discount coupon available)

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Paperback Edition: $21.95 USD

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Kindle Price: $9.95 USD


Moments In Time: At Home In The Woods
by Calvin Hunter & Susan Q. Knittle-Hunter

Moments In Time is the narrative and photo journal of Calvin and Susan Hunter as they built their home and lived their lives on the North Slope of the Uinta Mountains. Calvin shares personal reflections of their hardships and joys as their dreams unfold.


Publication Date: December 21, 2013
ISBN/EAN13 978-1493685868/1493685864
Full Color on White Paper
Page Count: 126
Binding Type: Paperback
Trim Size: 6" x 9" (15.24 x 22.86 cm)
Language: English
Price: $24.95 US


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Sotos Syndrome: A Tribute to Sandy
by Susan Q. Knittle-Hunter

The author relates a poignant account of the life and death of her special daughter, Sandy, who was born with Sotos Syndrome, a rare genetic disorder.


Publication Date: Dec 07 2013
ISBN/EAN13: 1494389339 / 9781494389338
Page Count: 116
Binding Type: Paperback
Trim Size: 6" x 9"
Language: English
Price: $9.95 US


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